Showing posts with label BAV. Show all posts
Showing posts with label BAV. Show all posts
Thursday, August 29, 2024

Aortic Valve Disease, Blood Flow, and the Brain!

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Aortic Valve Disease: Breaking through the Complexity   What is happening to me? Perhaps there is nothing more frightening than knowing our ...
Monday, September 26, 2022

September Awareness 2022 - Breaking the Pattern of Sudden Death

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This September 2022, we reflect on the 20 year experience of one man. Despite the odds against him, he is not only still alive but fully enj...
Wednesday, February 9, 2022

BAV in 2022 - We've Come a Long Way, Still a Long Way to Go....

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Heart Month 2022  Sacagawea - Arduous Journey  Beautifully portrayed here along the shores of the Missouri,  she inspires my own journey!  ...
Monday, February 7, 2022

When Sunset Comes too Soon - Remembering a Woman with BAV

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Pacific Sunset  This is written in remembrance of Julie . . .  a wife, mother, grandmother, and so much more... I am calling her Julie here,...
Saturday, January 29, 2022

Christmas 2021, a New Year and "Lucky to Be Alive" , January 2022

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Heart Friends for Over 20 Years  Red Jasper, for Heart Warriors  Everywhere! I have known this man for something over 20 years. After my lat...
Thursday, September 9, 2021

September TAD Awareness - Life-long Aortic Care for Coarctation

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The Right Emergency Care at the Right Time An account published earlier this year describes what happened in 2018 along a stretch of Inters...
Tuesday, September 7, 2021

September Awareness 2021 - Why "TAD" Awareness

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2001  and "TAA" (Thoracic Aortic Aneurysm) My personal involvement with aortic aneurysm in the chest began 20 years ago, in 2001. ...
Friday, July 23, 2021

Misdiagnosis and Disease - A BAV Perspective

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Misdiagnosis and the "Big Three" Categories: 75% of "Serious Harms" , 50% from 15 Diseases  Two papers published in the ...
Monday, June 21, 2021

BAV Lifelong Care - Carrie Mettler's Journey - 2016 to 2021

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May 2021 - Life is good! Background - Carrie's BAV Discovered in Early 1990's Carrie was born with BAV, but she did not know this un...
Tuesday, March 2, 2021

I Need to Find Somebody Who Cares

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Every Month is Heart Month, Every Day is Heart Valve Day February 2021 is just a memory now, the calendar has turned to March. Heart Month 2...
Monday, February 1, 2021

Pursuing Answers in Memory of Those We Have Lost - Heart Month 2021

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Red Jasper  On this first day of February, designated as Heart Month 2021, at the Bicuspid Aortic Foundation we begin by remembering those w...
Wednesday, September 30, 2020

TAD Awareness September 2020 - More Awareness, Many Challenges Today

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On this last day of September 2020, where are we in terms of awareness of aortic disease in the chest, both for the public and for medical p...
Tuesday, September 8, 2020

Thoracic Aortic Disease Awareness September 2020 - TAD in the Midst of COVID-19

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  How many have been injured or died from a diseased aorta in the chest (thoracic  aortic disease (TAD)), not receiving treatment for variou...
Thursday, June 11, 2020

The Power of Hope and "Redo" Aortic Surgery

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Introducing Joseph It was 10 years ago. We were two voices on the phone together. We have never met in person. I have never seen his pictur...